What’s the use of worrying?

worry

After the long build up, my powered wheelchair arrived last week – a real beauty!! This has led to me having a huge amount of independence returned at once; and it also means my wife has more freedom too. Now I can decide where I go indoors and precisely when; even deciding when I need the loo rather than having to be taken by my wife or opening the front door, but most importantly discovering where all the chocolate is kept in the kitchen!! The rise facility allows me access to higher shelves and the tilt-in-space lets me recline to sleep anywhere! Thank you to the NHS for this marvel! Forget the £350 million per week (to be saved by Brexit)! My wheelchair accessible vehicle arrives today, which means we will be able to go outside again and even venture to cafes, shops and restaurants as well as scenic situations such as Westonbirt Arboretum – which is amazing in the Autumn.

 

“People get so in the habit of worry that if you

save them from drowning and put them on

a bank to dry in the sun with hot chocolate

and muffins they wonder whether

they are catching a cold.”

On the other hand, it has not all been easy, BUT I have learned a simple lesson about WORRY. In order to get into the new wheelchair, we were unable to continue with the transfer board, but had to move to using the hoist, something we both wanted to avoid – maybe one mechanism too far, or simply an acceptance that my strength was decreasing. HOWEVER, once we accepted this, there were so many positives that showed what a waste of time the worry had been. The new method taught to us expertly by our brilliant OT – and once you get used to the feeling of being bundled in a horse blanket – takes away all the dangers and worries that transferring had produced without me really realising. It is comfortable, funny at times, much less strain and effort than transfer and massively safer. One of those things that you look back and think “Why on earth were we so worried about accepting it?” – a reminder to me of how earlier on I didn’t want to accept a stick or a bath board when they actually made things much easier.

Another joy…

Another tremendous source of joy has been the visit of Nuala and Enda who travelled down from Edinburgh in Enda’s half term to meet me.  They brought with them a bag of Scottish food and that gentle Irish humour ….and heaps of kindness.  Thank you

Coming in the next episode…….

Another highlight for me has been the starting of some genuine music therapy, so at last I will develop an understanding of what it is and how it helps me – more to follow on this in the future and maybe about how my composition develops through this. Once again, sincere gratitude to Sue Ryder for the vision and provision of this.
Just remember:
worry 3

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3 thoughts on “What’s the use of worrying?

  1. We too had a visit from Nuala and Enda. Unfortunately a flying one. I was looking forward to them staying overnight in Cheltenham – but maybe next time she visits she will keep a better eye on her suitcase instead of having to head back to Bath. The Gormleys are a truly lovely family. I was very pleased to read your blog and glad that there things that are making life easier for you and your family.

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  2. So true. It is so easy for us to fall into the trap of being so focused on what we have to do and what we think is expected of us that we stop simply “being”. I came across these words by the Dalai Lama a year ago and they help me to take a step back and think about what really matters – “If a problem is fixable, if a situation is such that you can do something about it, then there is no need to worry. If it’s not fixable, then there is no help in worrying. There is no benefit in worrying whatsoever.” ― Dalai Lama. Looking forward to hearing more about your music therapy, and hoping you might give us an insight into synesthesia.

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  3. This is so lovely! Especially helpful as an avid worrier ….seems silly to worry about and struggle to accept things which will be beneficial, but doesn’t make it any easier not to worry about them! Glad you’re enjoying new chair and will be able to organise nice trips out again! lots of love x

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