After the long build up, my powered wheelchair arrived last week – a real beauty!! This has led to me having a huge amount of independence returned at once; and it also means my wife has more freedom too. Now I can decide where I go indoors and precisely when; even deciding when I need the loo rather than having to be taken by my wife or opening the front door, but most importantly discovering where all the chocolate is kept in the kitchen!! The rise facility allows me access to higher shelves and the tilt-in-space lets me recline to sleep anywhere! Thank you to the NHS for this marvel! Forget the £350 million per week (to be saved by Brexit)! My wheelchair accessible vehicle arrives today, which means we will be able to go outside again and even venture to cafes, shops and restaurants as well as scenic situations such as Westonbirt Arboretum – which is amazing in the Autumn.
“People get so in the habit of worry that if you
save them from drowning and put them on
a bank to dry in the sun with hot chocolate
and muffins they wonder whether
they are catching a cold.”
On the other hand, it has not all been easy, BUT I have learned a simple lesson about WORRY. In order to get into the new wheelchair, we were unable to continue with the transfer board, but had to move to using the hoist, something we both wanted to avoid – maybe one mechanism too far, or simply an acceptance that my strength was decreasing. HOWEVER, once we accepted this, there were so many positives that showed what a waste of time the worry had been. The new method taught to us expertly by our brilliant OT – and once you get used to the feeling of being bundled in a horse blanket – takes away all the dangers and worries that transferring had produced without me really realising. It is comfortable, funny at times, much less strain and effort than transfer and massively safer. One of those things that you look back and think “Why on earth were we so worried about accepting it?” – a reminder to me of how earlier on I didn’t want to accept a stick or a bath board when they actually made things much easier.
Another tremendous source of joy has been the visit of Nuala and Enda who travelled down from Edinburgh in Enda’s half term to meet me. They brought with them a bag of Scottish food and that gentle Irish humour ….and heaps of kindness. Thank you
Coming in the next episode…….
Another highlight for me has been the starting of some genuine music therapy, so at last I will develop an understanding of what it is and how it helps me – more to follow on this in the future and maybe about how my composition develops through this. Once again, sincere gratitude to Sue Ryder for the vision and provision of this.